FOLLOW-UP from the 24-hour Nap: The 24-hour Awake Time. As I said in the previous video, this happens between 4 and 5 times a month usually. The good thing about the awake Days is that she is normally in a really great mood to begin with and by the end of the 24-hour week, as anybody would be, she's kind of rough lol. This doesn't necessarily mean every child with CDKL5 will have this issue, this is just something we experience and I have talked to other parents that have experienced it as well.

Navigating Naps: The Struggle of Following Mom

WE CAN’T BELIEVE WE JUST HIT 15M FAMILY MEMBERS! 🥹😭🥰

This Woman’s Strength Will Leave You SPEECHLESS...😨💪 | Amity Warme

Effective Naptime Routine for Busy Parents

Still doing contact naps at 2 years old and although we may not be able to get anything done but it’s the best thing ever 🥹