When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be
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FacebookHarrison & Duchenne - Raising Awareness of Duchenne
When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure
Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy. Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy · Original audio. When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long ...
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1.1K views · 24 reactions | CHKD offers the latest treatments for children with Duchenne muscular dystrophy. In this video, Director of Neurology Crystal Proud, MD, discusses the signs and symptoms of Duchenne's as well as a new treatment offered at #CHKD. #DuchenneMuscularDystrophy #Elevidys | Children's Hospital of The King's Daughters (CHKD) | Facebook
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1.1K views · 24 reactions | CHKD offers the latest treatments for children with Duchenne muscular dystrophy. In this video, Director of Neurology Crystal Proud, MD, discusses the signs and symptoms of Duchenne's as well as a new treatment offered at #CHKD. #DuchenneMuscularDystrophy #Elevidys | Children's Hospital of The King's Daughters (CHKD) | Facebook
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Duchenne muscular dystrophy is a progressive muscle wasting disease. It causes muscles to weaken over time because the body cannot produce dystrophin, a protein muscles need to stay strong. Duchenne affects every muscle in the body, including the heart and lungs. Despite the challenges, we choose faith, resilience, and joy. He has already surpassed what doctors once said was possible. Sharing our journey to spread Duchenne awareness and hope. If you’d like to support Duchenne awareness, drop a g
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Duchenne muscular dystrophy is a progressive muscle wasting disease. It causes muscles to weaken over time because the body cannot produce dystrophin, a protein muscles need to stay strong. Duchenne affects every muscle in the body, including the heart and lungs. Despite the challenges, we choose faith, resilience, and joy. He has already surpassed what doctors once said was possible. Sharing our journey to spread Duchenne awareness and hope. If you’d like to support Duchenne awareness, drop a g
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Duchenne Muscular Dystrophy
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Duchenne muscular dystrophy (DMD) is a devastating genetic condition that results in progressive muscle weakness, spinal deformities, heart failure and early mortality. While genetic therapies are being explored, current treatments only alleviate symptoms. However, MCW’s Dr. Brian Lin and his lab are researching a promising approach that examines a calcium channel which becomes hyperactive in DMD and how inhibiting that channel could counteract the leading cause of death in DMD patients. Learn m
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Duchenne muscular dystrophy (DMD) is a devastating genetic condition that results in progressive muscle weakness, spinal deformities, heart failure and early mortality. While genetic therapies are being explored, current treatments only alleviate symptoms. However, MCW’s Dr. Brian Lin and his lab are researching a promising approach that examines a calcium channel which becomes hyperactive in DMD and how inhibiting that channel could counteract the leading cause of death in DMD patients. Learn m
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Duchenne muscular dystrophy is a progressive muscle wasting disease. It causes muscles to weaken over time because the body cannot produce dystrophin, a protein muscles need to stay strong. Duchenne affects every muscle in the body, including the heart and lungs. Despite the challenges, we choose faith, resilience, and joy. He has already surpassed what doctors once said was possible. Sharing our journey to spread Duchenne awareness and hope. If you’d like to support Duchenne awareness, drop a g
0:18
Duchenne muscular dystrophy is a progressive muscle wasting disea…
55.1K views1 month ago
FacebookPurple Gaia
Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy
Feb 25, 2020
sarepta.com
Duchenne muscular dystrophy (DMD) is a devastating genetic condition that results in progressive muscle weakness, spinal deformities, heart failure and early mortality. While genetic therapies are being explored, current treatments only alleviate symptoms. However, MCW’s Dr. Brian Lin and his lab are researching a promising approach that examines a calcium channel which becomes hyperactive in DMD and how inhibiting that channel could counteract the leading cause of death in DMD patients. Learn m
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One of the most powerful tools for people living with Duchenne muscular dystrophy is something many people have never heard of: switch access. As muscle weakness progresses, pressing small buttons, pulling triggers, or gripping objects becomes harder. But that doesn’t mean the activity has to stop - it just means we adapt how it’s done. Take a Nerf gun, for example. By modifying it to work with a large external switch button, the trigger no longer needs hand strength. A light press of a switch,
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